I’ve mentioned my twin brother once or twice on this blog, including the fact that he suffers from SLE, more commonly known as lupus. I’ll pop some information links at the bottom of this post, but the gist of lupus is: it’s an autoimmune disease that, essentially, causes the immune system to attack the body’s healthy cells as if they were “bad” cells, and damages them. It varies from person to person, but it can affect the entire body, including skin, joints, and all major organs. My brother is affected everywhere, and I don’t necessarily want to try to explain what he goes through in my own words, so if you want to know more about his specific condition, he has a blog over at Life of a Lupie (lifeofalupie.wordpress.com).
His symptoms heavily affect his mobility. He currently has a manual wheelchair (which has recently been damaged), but he is basically unable to propel himself as the lupus affects his shoulder joints. I or another family member are there to help him as much as we can, but we can’t be there all the time, and he’s constantly having to cancel events because he’s simply unable to travel on his own.
He’s planning to go back to university this year, to do a Master’s in biomedical science, but for that to become a reality, he cannot struggle on in his manual wheelchair. He’d be commuting to a city 60 miles away, as we currently don’t have the finances to move over there again, so it would include traveling by train. He’d be unable to get around campus and classes unless he has the motorised chair.
Wheelchairs, unfortunately, are pretty costly, so he currently has a fundraiser running at http://www.youcaring.com/lupuswarrior where you can donate if you’d like. Any donation, no matter how small, is very appreciated. If you’re unable to donate, I ask that you share the fundraiser around your sites (Facebook, Twitter, Tumblr, WordPress, etc.) so that it gets around. Maybe your friends or followers are able to give something, or maybe their friends and followers if they share it too! It takes a second to pop the link into a tweet, but it might mean that my brother reaches his goal a lot more quickly.
With barely six months to go till his course begins, he’s just approaching the halfway mark. Please, please, be part of helping him get all the way to his goal!
Thank you so much,
NHS website: http://www.nhs.uk/Conditions/lupus/Pages/Introduction.aspx
St. Thomas’ Lupus Trust: http://www.lupus.org.uk/what-is-lupus
Lupus UK: http://www.lupusuk.org.uk/
Life of a Lupie blog: lifeofalupie.wordpress.com